I am 16 months and still sufferring. How long is the longest in here
Longest since WNV and still having symptoms
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 Gord |
Longest since WNV and still having symptoms |
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Posts: 3 (12/02/08 18:14:07) |
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mumto7 |
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Posts: 17 (12/02/08 18:20:16) |
I'm over two years now but not the longest. I believe it is Jack Raney. Would the longest be you in this group Jack?
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jack raney |
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Posts: 86 (12/02/08 19:18:38) |
8 years out is the oldest survivor here,
Jack Raney
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mumto7 |
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Posts: 20 (12/03/08 08:21:31) |
Who has had it for 8 years and what is his/her life like right now?
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wayne |
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Posts: 11 (12/08/08 06:24:20) |
I'm still here, visiting infrequently. I have a job again, and a wonderful family.
I was just reading the post on relapse. I was diagnosed with 'recurrent viral meningitis' in 1998. The doctors and I finally agreed that I was an early MN case of West Nile. My life got turned inside out and I still have problems but most people don't notice. So, I can't officially say I am a WN survivor because I never had the test. I can understand and explain all the signs and symptoms everyone here goes through! Best of luck, and keep believing that "Every day in every way I will get better and better!" Wayne |
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thissucks |
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Posts: 9 (12/11/08 18:22:38) |
Hi all,
I have only had it for 5months and counting...... |
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elaine |
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Posts: 61 (12/11/08 22:32:45) |
1 1/2 years. Sick the past two weeks: WNV or flu?
Elaine |
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Shirley WNG |
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Posts: 212 (12/13/08 17:23:55) |
5 years and life does get better but it is all about keeping your perspective! Shirley
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jeff |
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Posts: 19 (12/14/08 14:49:58) |
3 months and counting......all symptoms gone except weak left leg.....
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Jclauson |
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Posts: 82 (12/14/08 15:36:50) |
18 months and counting for me........still suffering, not able to work or drive. Some symptoms better than acute phase, others lingering and don't want to
go away. Had new symptoms appear the entire first year that were not present the first 3 months.
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gasman |
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Posts: 1 (12/19/08 18:12:48) |
Hi, signed up under husband's name. New to this forum. Found it while searching for "long term effects" and/or other symptoms related to WNV.
My husband had WN Encephelitis in July 2003. Had headaches and fever for 5 days (two of those days went to PCP, who said it was sinus infection and sent him home with meds) and was unable to work due to it. Fifth day (which happened to be July 4 and I was home all day to observe him) finally took him to ER late in the evening, where he stayed for 7 days until it was confirmed WN Encephelitis (after I kept asking Neuro MD to test him for it). Was then told there was no medicine or cure - so just go home and rest (which he did for about another month). He still has effects that we attibute to WNV, but are unable to prove or anything that doctors will take seriously as attributable to WNV. We are searching for "long term effects". Does anyone has anything that can help? He has applied for SS Disability, and now they are sending him to a Ph.D. for tests for what I'm assuming is neuro damage? This is what I've found so far: "The most common long-term effects are depression, tremors, fatigue, memory problems, extremity weakness, word-finding difficulty and headaches." He has all of these systems, plus in the past five years his health has decreased significantly - i.e. heart condition (2 stents); COPD, and other general illness too many to go into. Does anyone have more information on long term effects or what kind of tests that the Ph.D. may do for SS disability? Thanks, Connie |
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wayne |
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Posts: 12 (12/29/08 06:24:11) |
Thought I should update this morning. I've been able to do things that I couldn't have dreamed of three years ago and I think I am physically pretty
strong.
On Saturday morning my wife and I went out to cut firewood. I ran the chainsaw, did some splitting with the maul, and helped load. This is the first winter we have burned firewood since I got sick. Other times this winter my family has done most of the work involved in this task, but I get a little bull-headed sometimes. We fought the MN snow and cut and split about a 1/2 cord of oak. By Saturday night I was pretty light headed, stuttering, loud ringing in my ears, and feeling confused. I slept well Saturday night and spent Sunday in a daze. I slept until 8:30 in the morning and took a 2 hour nap in the afternoon. I feel like someone slipped me some strong pain meds - my thinking is a little fuzzy. Still came to work this morning and will fake my way through the day. I'm glad I did it, but will suffer through the consequences. Everyone have a great new year. |
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jenniferholmes |
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Posts: 18 (12/29/08 13:45:51) |
I have had wnv for 16 mos and I'm improving with the rgimine that works for me. I find if I do too much in a day I have to rest for a few days.
http://jama.ama-assn.org/...ontent/abstract/290/4/511
Jenn |
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mark |
There is hope | ||
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Posts: 1 (01/06/09 15:34:47) |
I had WNV in August of 07. Spent a week in the hospital and six more in rehab (meningitus, couldn't really walk, facial paralysis etc..). I guess I'm pretty lucky in that after less than 18 months I'm pretty much symptom free (still have very minor tremor when tired) and all function has returned. My experience is that with some work, I did get better over time and am back to practicing law and doing all of the things I used to do. |
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mumto7 |
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Posts: 51 (01/06/09 19:04:24) |
Wow Mark! That is great. Glad you are feeling so well. That is good news.
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JMize |
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Posts: 3 (01/28/09 10:17:18) |
2 1/2 years with wnv, still having symptoms. headaches, poor memory, & just recently told the pain in both my arms & shoulders are probably caused by wnv. |
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Dave |
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Posts: 1 (02/05/09 11:33:07) |
It's been 4 month since I got WNV. I missed 9 weeks of work and was afraid for my life for a few of those weeks. It took 3 weeks before I was diagnosed correctly. I still have symptoms of weakness and muscle spasms. I've read that the symptoms could last a year but I couldn't find any detailed information about the lasting effects of WNV. Recently I've finally realized that it's still affecting me mentally. It's been very tough to concentrate at work and I put the blame on my personal troubles, but it's much more than that. So I search WNV survivors for the first time today and here I am. From what I've read today, it sounds like I'm pretty lucky with my progress and degree which I got it. This is the first time I've ever felt that way because I suffered miserably.
Last Edited By: Dave
02/05/09 13:01:55.
Edited 1 times.
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duck19 |
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Posts: 103 (02/09/09 16:23:41) |
6 years in June and still having symptoms that keep me from working.
By the way, welcome to our site, Connie. I'm kind of asking the same question about disability. My work history, however, makes it difficult to even get it. I don't know if you need this bit of info or not, but what I was told by a lawyer was to get recent documentation by a doctor of how West Nile still affects me. |
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Dave |
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Posts: 4 (02/20/09 05:45:50) |
Connie, thanks for the welcome to the WN site. I know this is a little bit of a late response. I can't imagine having major symptoms for 6 years. A matter of fact, I never knew the symptoms could last more than a year. It's been 6 months since i got it and I still have some symptoms but nothing compared to what I've read on the WN site. But still if these symptoms don't go away, I very much will have paid a large price for this illness. My ability to concentrate and focus on complex issues at work is lacking and it shows in my productivity. I'm an engineer and this is very important. I find myself working 10 hour days to do what I was able to do in 8. I'm optimist that I'll be fine. Good luck to you. |
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quezic |
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Posts: 2 (03/06/09 22:35:50) |
I think it was around 2004 but could have been 2000. Think I was about the 10th person in Michigan to have it. Dont know to much at all about except they told
me I had it. Still having problems ever since than. Just found you guys tonight ... put a smile on my face.
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meinecke |
Still Having Symptoms... | ||
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Posts: 18 (03/07/09 09:30:11) |
hello all, Meinecke here-while I do read this website quite often, I don't reply much, but, today I feel like chatting...I was bitten August 2007 at my
house while removing wet straw from the north side of my house (I remember telling myself to do so BEFORE something began living in it)..it was a Monday,,trash
day was the next day. By Thursday I was dizzy, light-headed, flu-like. By Monday I was a mess-no body control, massive headache right on the top of my head,
very sore lymph glands worse on right side-needless to say, I was very sick. My doctor refused to believe it was something other than 'in my head'.
After two weeks and visits to psychiatrists, I finally got the WNV test and after a month of feeling like I was going to die, I had my results: West Nile
Virus. It was NOT the flu, it was NOT chronic fatigue syndrome, it was NOT sinus-but I wonder if I had been admitted to the hospital as I wanted, maybe I
would not be having problems today...however...after 18 months, I did get a disability retirement from the US Postal Service (they were probably thrilled I did
not pursue a workers comp claim (don't know if I would have won anyway)) and I do receive SSI disability every month because I can not work-I still get
migraines, I wake up with nerve tremors, I have fibromyalgia so bad now that I take vicodin daily-BUT>>>Iam thankful for this website-you 'all
have imspired me to keep going-some days I can not be active, other days I try to swim, or walk the dogs...I guess I am trying to add my two cents for
others-to keep going-if I can help with any questions on filing for disability-I did it myself and got my award within 6 months of filing-maybe having a
strong, continual work history helped, but if I can answer anybodys questions-it is possible to get social security disability from WNV-I am proof...keep
smilin' and thank you to all of you-we make a great support team......
love, long-winded Carol
CMMeinecke
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