Indicators of Relapse

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gearhead	Indicators of Relapse	Lead	[-]
Posts: 157 (11/23/08 21:13:13) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Tags : None Howdy! I was wondering if any of you have noticed a pattern for a relapse? I have noticed that if I have any kind of stress, my body cannot handle it at all and my hands start shaking. I have also noticed that when I start to relapse I get a sore throat and my gums kinda feel raw. The sore throat only goes away when the relapse stops. Anyone else have this wierd symptom? The sore throat seems to be my constant indicator of when I'm in for a down turn.
brian		#1	[-]
Posts: 30 (11/23/08 21:53:35) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	If I am over tired or over stressed I relapse. For me it is pain that starts in my back and in my right elbow. I get extremely fatigued and my arms feel really heavy.
jeff		#2	[-]
Posts: 13 (11/23/08 22:20:09) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	If I am tired or stressed as well. Brian, How long since you contracted the virus? About 2 months for me. Jeff
duck19		#3	[-]
Posts: 100 (11/24/08 05:21:27) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Oh, yeah. I get more digestive problems than anything and its usually accompanied with vomiting. Kind of like a harsh flu and a major case of food poisoning mixed together. Sorry for being so descriptive, lol. But yeah - every time fatigue hits, I get this way. So, you're not alone in getting those warning signs. Last Edited By: duck19 11/24/08 05:24:20. Edited 1 times.
brian		#4	[-]
Posts: 32 (11/24/08 07:56:20) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Jeff, sorry........the username says, "Brian". That is my husband. He created the account while I was in the hospital. My name is Rachel. I really should sign my name at the end of my posts. I keep forgetting to. Sometimes Brian does get on here especially while I was really sick or if he has questions of his own. I've had WNV for over two years now. I just recently had a really bad flare up that landed me in the hospital for a week with even more severe symptoms/reactions....... Duck19, sorry about the vomiting. Ugh, I'll take my physical pain over that. I can't stand throwing up and do everything in my power not to. Poor you!
mumto7		#5	[-]
Posts: 1 (11/24/08 08:23:14) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Okay, I've pulled on my big girl pants and have created my own account since I'm such a dope and keep forgetting to sign my name confusing everyone thinking they are hearing from some guy named Brian who has given birth to seven kids and has PMS. Not that I wouldn't be more than happy to dump all of that onto my good husband........I just haven't figured out how yet. So, still me, Rachel......just have my own account now so my husband can stop tossing and turning at night having nightmares of people thinking he walks around in stiletto's.....(different discussions ........but you get the idea)
thissucks		#6	[-]
Posts: 6 (11/24/08 20:20:51) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Hi Gearhead, If I do too much or have stress I begin to shake in my arms and muscle pain along with joint pain increase. One thing you will learn is that if you over do it your body will definitely tell you. Being that your immunity has been compromised it is sensitive to just about everything.
mumto7		#7	[-]
Posts: 2 (11/25/08 09:24:09) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	What is amazing to me is how the pain moves around in my body. For the last several days it was in my right knee, today it is in my right wrist, other days I'll have chest pain. Amazingly, the only place I haven't had it is in my Butt! Then again, if I were to put all of this under one big category it would say, "A big pain in the butt"!
gearhead		#8	[-]
Posts: 158 (11/25/08 09:32:51) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	...never say never Rachel. haha.
mumto7		#9	[-]
Posts: 4 (11/25/08 21:25:51) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	I know.......that is what got me into this mess in the first place. "What? West Nile? I'll never get that........"
gearhead		#10	[-]
Posts: 159 (11/25/08 22:30:20) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Ditto! I was joking about the "West Nile histeria" the evening I got bit. So young, so naive...eh, who am I kidding...It was just ignorance.
janwan		#11	[-]
Posts: 44 (11/27/08 07:26:51) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	GEARHEAD, It's uncanny that I have the exact same relapse symptoms that you do. First, the sore throat, my mouth feels like it has been scorched by hot soup, then the fatigue, pain in my hips, and you know the rest. Oh yeah, and the tremor in my hands comes on with the first hint of stress. Thankfully, my neurologist prescribed Cymbalta and two shots per week of vitamin B-12 -6 weeks ago and it has helped enormously with the neuropathy. I have had less fatigue and pain than at any time since I was infected in Aug. 2007. She told me that it helps more than anything else for her wn patients. Anyone else had good results with Cymbalta? Happy Thanksgiving to all!!! I am thankful for the health that I have. Janice Last Edited By: janwan 11/27/08 07:33:12. Edited 1 times.
cag121		#12	[-]
Posts: 10 (11/27/08 18:00:22) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	I get the hand tremors and the sore throat along with a skull-splitting headache. I always have a headache, but it'll get to where I can't stand up, I'm so dizzy. I've been infected for 4 months now, and I'll have a good week, then overdo it and spend the weekend in bed, and so on... It's funny you mentioned joking about west nile right before you were infected. My mom and I stopped in a Walmart in Kansas on our road trip to IL and checked labels until we found a mosquito spray with the most deet, because my mom was worried that, me spending 8 weeks in IL, I'd get bit and catch WNV. And I used that dumb spray everyday, and still, here I am! I really think that was the funniest moment in my life so far, having the doctor tell me my WNV test came back positive. I laughed so hard... how ironic is that? Hope you all had a wonderful Thanksgiving! There is much to be thankful for!
mumto7		#13	[-]
Posts: 8 (11/28/08 10:13:33) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Hmmm, sore throat. I've never put that together with the WN. Two days ago I got a sore throat. I've had it for two days now and have relapsed. I thought I had caught a cold from somewhere. May have still but I'll have to take note when ever I relapse to see if there is a connection. Will be interesting to see if I get a sore throat again.
gearhead		#14	[-]
Posts: 162 (11/28/08 16:39:37) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	I got a horrible sore and swollen throat on Monday and thought it was because of a relapse from the craziness last week...but I really got the flu. Bad sore throat for three days and a fever, and now I've had a really really stuffy nose for two days so far. When I relapse just from West Nile, my throat does get sore...not really swollen like it was with this flu. The only reason I notice the sore throat when I relapse is because that was the very first symptom I got when I initially got West Nile and every time I start to relapse it feel just like it did that first night. Thanks for the info on what's been helping, Janice. I'm totally gonna look into that stuff. May I ask if you had any side effects on the Cymbalta? I had a doctor recommend it to me once but I declined because I was afraid of the side effects. Last Edited By: gearhead 11/28/08 16:47:01. Edited 2 times.
mom2babyd		#15	[-]
Posts: 25 (11/28/08 20:59:15) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Hey Janice, I love my cymbalta too! i've been on it 8 or 9 months now of the 13 or so with WN and it made a huge impact in my life for the better! i could cope better with the anxiety and depression that came with my WN as well as the PTSD i was diagnosed with and lowered the volume immediately on the peripheral nerve pain and i'm nerve pain free 99% of the time, except when i have a flare up or another viral illness invades. I've had very few side effects, none really other than some constipation. I call it my happy pill and am pleased with the results thus far. Not sure how long i will stay on it, but at least another 4-6 months before i try to wean. glad you've found something that's helping you, i know it was a turning point for me in my recovery. take good care- gigi
Gord		#16	[-]
Posts: 2 (12/02/08 17:58:16) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Relaspe indicator hands start shaking happens to me and veryn fatiqued.
elaine		#17	[-]
Posts: 59 (12/05/08 19:39:48) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Hello, all, As you might know from my recent posts, I've been having what appears to be a relapse, with many original symptoms coming back. So I went to a local infectious disease dr. today, and he claimed that we don't relapse - we just get better gradually. This just a day after my husband spoke with a local long-time WNV sufferer who said he surely did have relapses ... and after reading relapse material from almost all of us. Go figure. I held my tongue, but did tell him about the local fellow whom the dr. himself had treated. Any thoughts? Elaine
mumto7		#18	[-]
Posts: 26 (12/05/08 23:34:51) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Elaine, Just that proof is in the puddin'. We all here sure as heck are relapsing........go figure.........I think your doctor needs to brush up on WNV as it doesn't seem to run the usual course of other viruses. Sorry you are having such a tough time. Rachel
janwan		#19	[-]
Posts: 45 (12/06/08 05:38:49) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	Hey Gearhead, I have no side effects from the Cymbalta. None. Good luck!! Also, I have not had a bad relapse or "down cycle" since I started it. It did something to take away my body aches and fatigue. Not totally, of course. But, I am able to shop, grocery shop, and last weekend I worked a football game at my high school and I was not wiped out afterwards. I mean, this is significant. I used to not be able to stand for more than 10 minutes or so without leaning on something. This is real progress and I am so encouraged. Will keep you all posted on any relapses. I had the menningitis, hospitalization, and bad wn initially. I still have tremors in my arms and hands.That will never go away. I just try to ignore it. It doesn't hurt, just a nuisance. Janice Last Edited By: janwan 12/06/08 05:47:09. Edited 1 times.
jenniferholmes		#20	[-]
Posts: 20 (12/29/08 13:57:26) Reply Quote More My Recent Posts Message Me Connection Blocking Invite Ignore User's Posts	I had sever relapses the first 5 months. I have little ones now, when I do too much. I also get a sore throat, swollen lymph nodes, fatigue and headache. I gave up on Drs about 3 mos ago when I kept getting the same answer of it is all in my head or my neurons have to heal. I think there is more to this virus and it will take time for Drs to follow. This is a great site for support. Keep on helping each other. I found Lysine twice a day really helped me fell better and not have such severe relapses. I ran out about 3 days ago and I'm going to see if I can handel it without it.

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